BRYAN EATON/Staff photo. Robbie Edwards, 4, with her mom, Kasey in their Newburyport home. Robbie is believed to be one of only 17 people globally with the disease spastic paraplegia-47, a neuro-degenerative condition without a cure.

171212BEAdiseaseNewburyportKaseyRobbieEdwardsspasticparaplegia47